Homepage > Projects > Flagship projects > Fighting sickle-cell disease

Fighting sickle-cell disease

Sickle cell disease, a hereditary haemoglobin disorder, is the world’s most common genetic condition: according to WHO, 50 million people carry the disease, and it is estimated that one in every two children affected dies before the age of five without treatment.

Countries in the tropics are among the worst affected, particularly those in West Africa. In addition, people in the various countries concerned very often live below the poverty line and access to healthcare, even in urban areas, is not easy for many families.

In this context, Monaco’s international development policy has, since 2007, focused particular attention on Fighting sickle-cell disease, in parallel with its other activities relating to neglected diseases. Its activities address SDG 3 relating to health and the goal of reducing infant mortality.

Strengthening the Fighting sickle-cell disease flagship programme involves:

  • 6 target countries: Burkina Faso, Madagascar, Mali, Mauritania, Niger and Senegal
  • 4 national referral centres build, equipped and operating (Mali, Niger, Senegal and Madagascar)
  • Creation of a university sickle-cell degree programme in Bamako
  • 5 sickle-cell charities supported, creation of African Sickle-Cell Network
  • Launch of a standardised guide to treating the disease in West Africa and Madagascar with leading doctors from 6 countries
  • Support for scientific research
  • 1 health-related micro-finance programme to support patients in Niger

Main partners: Health ministers in the 6 target countries: Burkina Faso, Madagascar, Mali, Mauritania, Niger and Senegal, sickle-cell patient associations in the 6 target countries CID - Burkina Faso, LCDM - Madagascar, AMLUD - Mali, ASDM - Mauritania, ALDN - Niger, ASD - Senegal ; Santé Sud, Steps Consulting Social, Eval+, IECD